Jameson’s Journey (501c3) was founded in 2016 by AliceAnn and Frank Meyer in honor of their son Jameson.
Jameson was born with a rare craniofacial syndrome, Pfeiffer syndrome. Pfeiffer syndrome occurs in one in every 100,000 births and is only one of nearly 180 different types of craniofacial syndromes. It affects the growth and development of bones and tissue, mainly in the head, hands and feet. In addition to the complex medical treatment children like Jameson undergo, they face social challenges because of their appearance.
Our dream is to live in a world where children like Jameson, and others who have defining differences are openly accepted for who they are – without hesitation. Our mission is to serve as a source of strength and support for all children living with craniofacial differences.
We hope to accomplish this through sharing in the experience of life’s adventure! At Jameson’s Journey (501c3) we are dedicated to creating events and opportunities that bring our community together. Providing education and awareness, promoting acceptance for all, and fostering a community that supports inclusion.